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Monday 06 Feb 2012
snwboardchik947 Profile Page
snwboardchik947
666
OFFLINE
3 years ago
2 years ago
3 years ago

Parent Info

snwboardchik947
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Manchester, NH
USA

Canavan Children

Child's Photo
Paul/harleeGrace
Paul is 2 years old he is very happy and smiling boy he loves to moan and talk to everyone harleegrace is 5 months she does love when paul talks to her they bond very well with each other
4 years
Paul has had 3 spinal taps and had to be sadated also he had his j/G tube placements
harleeGrace hasnt had any surguries yet
Paul is in PT/OT/SP once a week
HarleeGrace is in PT/OT once a week
Paul has a wheelchair named the bug it is very heavy and doesnt really suit his needs he is getting fitted for another soon he also has a bath chair for when he gets older and has a tumbleform feeding chair he will be getting much more equitment after the holidays
harleeGrace is getting fitted for her wheelchair and other equiptment down the road
Paul is on many differnt meds
Baclofen- for high tone
Calcuim acate
Calonipin-for irribility
Prilocec- reflex
miralax-contipation
diamox- head circumfrance
HarleeGrace is on a couple
Diamox- head circumfrance
Miralax- constipation

Additional Information

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Location

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