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| 666 | |
| OFFLINE | |
| 3 years ago | |
| 2 years ago | |
| 3 years ago |
| snwboardchik947 | |
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| Manchester, NH | |
| USA |
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| Paul/harleeGrace | |
| Paul is 2 years old he is very happy and smiling boy he loves to moan and talk to everyone harleegrace is 5 months she does love when paul talks to her they bond very well with each other | |
| 4 years | |
| Paul has had 3 spinal taps and had to be sadated also he had his j/G tube placements
harleeGrace hasnt had any surguries yet |
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| Paul is in PT/OT/SP once a week
HarleeGrace is in PT/OT once a week |
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| Paul has a wheelchair named the bug it is very heavy and doesnt really suit his needs he is getting fitted for another soon he also has a bath chair for when he gets older and has a tumbleform feeding chair he will be getting much more equitment after the holidays
harleeGrace is getting fitted for her wheelchair and other equiptment down the road |
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| Paul is on many differnt meds
Baclofen- for high tone Calcuim acate Calonipin-for irribility Prilocec- reflex miralax-contipation diamox- head circumfrance HarleeGrace is on a couple Diamox- head circumfrance Miralax- constipation |
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