I have a daughter, who was diagnosticated with canavan... I live in El Salvador and I met other family that have 2 childrens with the same disease, they live in Guatemala and the mother of the children send me your web...I feel in my heart, that we will not lose our FAITH and Our children are ANGELS, GOD HAS THE LAST WORD...HE IS THE ONLY ONE.
Just looked at the video ,I had a smile on my face all the time . When you see Ben he makes you want to smile . You can see he is a very happy little boy enjoying everything around him . Wonderfull to see so much things we saw with our son when he was that age . I believe he is growing up in a very loving family that makes the best of it and gives him so much love that he must laugh all the time .I wish I had such a video , it is a document you will allways cherish.
What a great website. Harry often comes home from school and will talk about Ben along with the other children at his school. Not only is this website a learning curve for those with little or no knowledge of such a disability, it's so heartwarming to see Bens life story and how much he is loved not only by his family, but many lives he touches. Totally inspirational.
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When you see Ben he makes you want to smile .
You can see he is a very happy little boy enjoying everything around him .
Wonderfull to see so much things we saw with our son when he was that age .
I believe he is growing up in a very loving family that makes the best of it and gives him so much love that he must laugh all the time .I wish I had such a video , it is a document you will allways cherish.
greetings from Holland Sylvia
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