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Written by Sally Fletcher
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Thursday, 03 September 2009 14:07 |
As the highlights to Ben's story there have been some really special days that I know I will always remember and would like to share with you. Despite having Canavan Disease Ben is an amazing gift, like every child.
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Waiting for you
That amazing rainbow that made me think you were on the way
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You're tiny heartbeat like a
light in the dark
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Counting the days and watching
my bump grow
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Our first year together
You and me home alone together
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Quiet days without appointment
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finding things we could do together
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Your blessing service
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Summer 2006
We had a warm summer
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evenings in the garden all together
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Aunty Jade & Uncle Andy's Wedding 2006
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What a proud day when you
were a page boy
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Blickling Hall Autumn 2006
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On a sunny autumn day
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Scope
We had great times at Scope together
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Euro disney
What fun we had at the
Pooh show
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and meeting the cast afterwards
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| Days out |
sometimes we manage to leave the appointments and medicine behind
for a while and do things like normal families - phew!
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Last Updated on Wednesday, 18 November 2009 20:39 |
