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Written by Sally Fletcher
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Sunday, 01 August 2010 13:53 |
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For our 10th wedding annaversary Adrian and I had a fantastic night away at Adlards in the country http://www.davidadlardcookeryschool.co.uk/?page_id=157 a lovely B&B run by our favourite local chef. It was great to have a special meal in lovely surroundings and then stagger upstairs to bed! Being me of course I looked forward to this break and then missed all the children terribly and looked forward to going home! I would highly recommend it as a special treat!
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Written by Sally Fletcher
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Sunday, 01 August 2010 13:50 |
On 30th July Ben went for his latest session of Bottox. He tolerated the anaesthetic very well and as he was only having bottox on this occasion and was first on the list he was able to be in and out of hospital in 7 hours which was great.  I was upset that his consultant thought that he continues to have increased contractures in his muscles which the bottox can't help 
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Written by Sally Fletcher
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Sunday, 25 July 2010 19:59 |
It's been a really busy last few weeks of the school term here, Ben has attended school for several extra events such as sports day and he particularly enjoyed an afternoon of country dancing.
Ben had a terrible pain two weeks ago, he wasn't screaming or crying but really curled up stiff, couldn't put his legs down and just kind of struggling abnormally. After some advice over the phone from our brilliant GP's an ambulance came to take him to hospital as we could not get him in a position in which we could sit him in his buggy.
It turned out to be a severe urine infection that was giving him a bladder spasm, poor Ben I hate it when I find sometimes that something has been going on and causing him pain and it's taken for it to get really bad before I have realised.
The antibiotics he was given gave him terrible diahorreah, the worst I have ever seen and after 8 days he had to stop them, we've done a second urine test at home, that was fun. We had to sit for 3 hours with Ben on his bed and a sterile bowl in hand ready to catch a sample until he finally went! The things we do! We should get the results tomorrow so hopefully all will be clear.
Yesterday Adrian and I renewed our wedding vows to celebrate 20 years as a couple. Happily Ben was well and the sun was shining. Ben was our Best Boy with Harriet and Sam as bridesmaid and page boy, I hope to be able to update the site with some pictures soon.
I hope all our friends are well and have a healthy and relaxing summer as we hope to.
Best wishes
Sally x
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Last Updated on Tuesday, 24 August 2010 06:47 |
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Written by Adrian Fletcher
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Sunday, 06 June 2010 07:53 |
Work is about to start on Ben's room (his 'Head Quarters' as it has become known). This work will involve
gutting his current bedroom, taking down the ceiling adding sound insulation, building an extention, putting in four new windows, a new bathroom (including a whirlpool bath), and installing a medicine station. It's going to be a long summer!
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Written by Sally Fletcher
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Thursday, 03 June 2010 06:15 |
Hi
In the hopes that summer will arrive and stay for a while in the UK soon I have bought Ben a couple of underwear garments from fledglings. These garments are made to order, the ones I chose were like extra long T-shirts with poppers on the legs and I had them made in bright colours and quite long so that Ben can wear them like a romper suite! He gets really really hot in the summer and I think this will help him stay cool.
From the brochure on the website Page 7 we ordered items 4a and 7a, the actual person who makes them got in touch with us, and although not cheap will give Ben something cool to go out in on those really hot summer days.
http://www.fledglings.org.uk/
Another handy buy I think at the moment to mention is that B&Q have some led colour changing lights in-store in various shapes such as a ball, cube or heart. We got some for Ben to look at in his sensory room, in store in Norfolk I think I paid just £2.50 for them but they are shown even cheaper on-line in the link below -
http://www.diy.com/diy/jsp/bq/nav.jsp?action=detail&fh_secondid=10668049&fh_view_size=10&fh_location=%2f%2fcatalog01%2fen_GB&fh_search=light+led&fh_eds=ß&fh_refview=search&ts=
Hope everyone is having a good summer?
Sally & Ben x
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Last Updated on Thursday, 03 June 2010 06:25 |
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