Canavan Links

The Canavan Research Foundation http://www.canavan.org

This website has been a great help to us putting us in touch with other canavan families and providing us with information from people experienced with looking after a child with canavan disease via their forum.

Canavan Foundation http://www.canavanfoundation.org

The Myelin project http://www.myelinproject.co.uk

A website about our friend Nicholas - living with Canavan disease http://www.nicholasbreedon.com

A Website About Jacob and his mothers fight for a cure http://www.jacobscure.org

A website about Canavan Research Illinois and our friend Max http://www.canavanresearch.org

A film about our friend Kevin who has Canavan Disease, lives in Holland and is 26! http://www.l1.nl/popups/mediaplayerpopup/_rp_comm_lsvideoId/1_3381910

The official website for Legal Aid's 60th annaversary Ben is featured here   http://www.legalaid60.org.uk/why/ben_story.jsp