Re: Question about cerebra

Thank you Sally, for the infomation.

Question about cerebra

Hi Sally,
I saw that you have prepared a portfolio for Ben. But I could not get how I will prepare a passport for Sarp. And actually I could not understand how this portfolio will help him.
Is that for the nurses, doctors to understand Ben?
And how I can get it from UK, any idea?

Thank you for your help.



http://www.cerebra.org.uk/parent_support/personal_portfolios

Permission

Hi Sally,
I read the poem of "Wellcome to Holland" in canavan foundation site before the page was changed. It was the time when Sarp was diagnosed with Canavan. It is really very touching poem still I cry when I read it. I kept a copy of that poem and read sometimes. Now I saw it in Ben's page and I wanna ask permission to use it.
Now we are preparing a web site for Sarp. And I want to share this poem in Turkish in Sarp's page if you do not mind.
In Turkey there is no individual site of a canavan site. So we are very excited. I hope I will share it with all of you as soon as possible.
Thank you